It is scary to hear the words “palliative care.” In my imagination, it means that I, as a mother, have come to terms with the circumstances. We were an ordinary family ...
It is scary to hear the words “palliative care.” In my imagination, it means that I, as a mother, have come to terms with the circumstances. We were an ordinary family where cancer came into our life. We have been confronting him for almost 1.5 years. I kept telling myself that agreeing to palliative care would have been the last thing… But when you stay with a child for whom there is no treatment, and when there is no one to ask for advice, you go blind.
I found the palliative care program of the Tabletochki Foundation. I hesitated to write at first, but then I dared. The coordinator listened to me and tried to understand my situation; no one violated my boundaries; the doctors did not insist that this was the end, instead, they went side by side with my family and me. At this point, I calmed down and realized we were not alone anymore.
After the first conversation, the Foundation provided us with the necessary medicines and medical supplies. But the main thing is daily care for the child. We have 24/7 contact with a doctor who has found an approach for our family and correctly suggests the next step.
I also want to thank the psychologist. I could not cope with my condition or the family’s condition. Psychological support allows you to say what you are silent about all the time.
I want to tell parents not to give up working with a psychologist. Please, find time for your soul because it is no less critical than a situation with the child.
I am grateful for the support of Tabletochki’s coordinators. There are times when I lose the strength to move forward, but the accuracy of the words and the faith of each of you makes our lives happy TODAY.
Don’t be afraid to live with “we are on palliative care.” Learning to LIVE is essential for parents and their children.
Thank you for your work.